Home Sweet Home

I want to start off saying sorry for the disjointed last post, being in a morphine fog will do that to one…

Well I am finally home; after 14 long days of being in the hospital I can finally get back to some semblance of a routine.

Last week was pretty tough, I was able to move from clear fluids to pureed food easily on Tuesday though Thursday, but on Friday they moved me to a post gastrectomy diet. Needless to say that didn’t turn out well. I ended up wretching Friday night going to bed feeling some what better but on Saturday morning after toast (which was tolerated well on Friday) the pain in my upper abdomen grew exponentially. It was cold sweats, tons of pain, and general uneasiness. I was in rough shape, lost all colour and thought that I couldn’t take it any more. I have NEVER been in that much pain in my life.

I ended up having a CT (in which I think I got 250ml of telebrix down instead of the 2L they gave me) and x-ray that night, showing inflammation in my new connections, which was the cause of not being able to get anything down. I was put back on no intake of anything for another couple days to allow the swelling to go down.

On Tuesday they let me start back on clear fluids which went good, since nothing was vomited up. *Happy Dance* Wednesday my Doctor bumped me up to full fluids and advised that’s what I would be on for nourishment for 2-3 weeks to allow continued healing.

It was nice to be sent home on April 29, it was happy though emotional because of the few crappy days and the compassion and warmth the nurses and nursing assistants showed during my stay.They do such a tough job and cannot be praised enough for what they do every day!

I had enough stamina yesterday to go to the grocery store after being released and picked up what is needed for the next few days, no sugar added ice cream and popsicles, broth, canned soups, yogurt, juices, protein drinks (so far the only one that I found that’s tolerable and doesn’t make me want to vomit more is the Carnation Breakfast Essentials – Chocolate) pudding, and apple sauce. I have a new appreciation for looking at the labels, because prior to this I really didn’t! It’s so important without a stomach that you get enough protein and watch closely your sugar intake.

The next two weeks until I see my surgeon I hope will go fast. The liquid diet will be difficult to reinvent each day and make sure I am getting enough calories, protein and other nutrients to prevent extreme weight loss and lack of energy.

The first day so far hasn’t been too bad, made from scratch cream of potato soup (that we had to blend to smooth) with my mom and relaxed. We will see what adventures the next week brings.

Wishing you all happy and healthy days!

5 Days Post Op

Well it went off without a hitch and I was in my room around 6 pm. 

The epidural is only working on the right side but the pain management team here is taking good care of me. It’s only been at a 2-3 level. On Friday, the day after surgery my pain pump stopped working, those were nearly the worst couple hours of my life! I was so close to tears and was exhausted the entire day because of this. I still got up 2 times and walked on Friday. 

Saturday was a much better day, had a few visitors walked the halls 3 times and my pain pump didn’t crap out. 

This infor is TMI for the men but I felt would have been good information Prior to getting in here…I didn’t realize that surgery could make a lady have her monthly cycle early..not great! 

The hydro morphone makes me itch and meds can be given every 2 hours to my relief. But it doesn’t really help that my incision is starting to itch like crazy! 

I have been walking but not enough sometimes it’s really important that as the days go on you are walking every couple hours to ensure bowel activity stays. 

Today I get my swallow test and hopefully start with a liquid diet then tomorrow epidural and catheter out (which is super annoying for me because I have never had one before) but YAY!!! 

I was really scared about pain after the surgery, and how it was going to cope. But it’s been not as bad – everyone eesponds differently to pain and meds but I am glad for the ease. I Feel quite tight throughout my belly sometimes and it’s uncomfortable but not unbearable. 

Be prepared to be woken up every hour for the first night (the nurse practically stays in your room until morning) and so long as everything is going okay it drops down to 4 hours after that. It’s usually clockwork they come in (and if you are what I call lucky) you might wake up right before they get there. 

Well it’s tiring you will spend a lot of time in bed but again make sure you are getting up 

The incision

  

my coworkers bought me puzzle doesnt fit on the try but its a difficult one

 

My coworkers are amazing they sent me off with some games, cards from each of them, puzzles and a doctor who blanket and pillow. Also some nail stuff for at home. I had a great day on Wednesday because of them! 

Will update with the swallow test results and getting back to eating. 

Have a great day!

Tomorrow A New Chapter Begins

Well tomorrow is the day, I will be admitted at 6:00 am to have my surgery completed and start this new chapter of life.

Today was a difficult day, but made so much better by my lovely co-workers.  They made me a geeky basket including a Tardis blanket and pillow, the Harry Potter movies, puzzles and activities and a wonderful cake as well. It was quite touching and their support is so amazing, my day wouldn’t have been as great without them.

I had my last junk foody meal today – a burger and fries, needless to say I got my fill of the foods I wanted to eat over the last couple weeks.

But I’ve been a bit anxious and was up at 3:30 this morning, it’s bed time now as we need to be up at about 4:45 to be out of the house on time.  Good thing traffic won’t be so bad first thing in the morning.

I want to thank each and everyone of you for your support over the last few months, I greatly appreciate it! May you all have a wonderful weekend and I will post as soon as I am out of my morphine fog.

Nicole

A Few Extra Days as Friends…

Well, yesterday I got a call from my surgeons office “We need to move your surgery to April 16, is that okay?”

It’s going to have to be I guess…the last week or so has been pretty stressful to say the least. I know the weight of what is going on has been taking a toll on everyone in my family. I have been having a bit of cold feet just because of the whole surgery thing; I haven’t broken anything before and haven’t needed to stay in the hospital other then when I had my daughter. I think that is the biggest thing that is making me bug out a bit still. I just need to keep reminding myself that I am doing this to be healthy for my family!

On the bright side I get to have a couple extra days at the gym and get to enjoy a few more good meals before I part with my stomach and a bit more time to finish the blanket I am making for my daughter. We had a nice weekend away at Lake Louise; ate some amazing food in Banff (hot rock cooking and fondue at The Grizzly House) and in the village of Lake Louise for breakfast at the Hostel. This weekend we are planning on cooking a turkey for Easter, and being able to have company is nice and will help to keep my mind off of what is ahead.  The next 2 weeks will sure be busy trying to get together with friends for a drink and some food, and to just enjoy the time together.

I can never say enough about how much my significant other has supported me through this; I know this isn’t easy on him and we definitely have been struggling here and there but we pull it together and work as a team after a brief period of weakness. He’s awesome at helping me talk through my emotions; and work things out. I am so thankful to have him here!

Well goodnight all, take care and all the best until next time.