I want to start off saying sorry for the disjointed last post, being in a morphine fog will do that to one…
Well I am finally home; after 14 long days of being in the hospital I can finally get back to some semblance of a routine.
Last week was pretty tough, I was able to move from clear fluids to pureed food easily on Tuesday though Thursday, but on Friday they moved me to a post gastrectomy diet. Needless to say that didn’t turn out well. I ended up wretching Friday night going to bed feeling some what better but on Saturday morning after toast (which was tolerated well on Friday) the pain in my upper abdomen grew exponentially. It was cold sweats, tons of pain, and general uneasiness. I was in rough shape, lost all colour and thought that I couldn’t take it any more. I have NEVER been in that much pain in my life.
I ended up having a CT (in which I think I got 250ml of telebrix down instead of the 2L they gave me) and x-ray that night, showing inflammation in my new connections, which was the cause of not being able to get anything down. I was put back on no intake of anything for another couple days to allow the swelling to go down.
On Tuesday they let me start back on clear fluids which went good, since nothing was vomited up. *Happy Dance* Wednesday my Doctor bumped me up to full fluids and advised that’s what I would be on for nourishment for 2-3 weeks to allow continued healing.
It was nice to be sent home on April 29, it was happy though emotional because of the few crappy days and the compassion and warmth the nurses and nursing assistants showed during my stay.They do such a tough job and cannot be praised enough for what they do every day!
I had enough stamina yesterday to go to the grocery store after being released and picked up what is needed for the next few days, no sugar added ice cream and popsicles, broth, canned soups, yogurt, juices, protein drinks (so far the only one that I found that’s tolerable and doesn’t make me want to vomit more is the Carnation Breakfast Essentials – Chocolate) pudding, and apple sauce. I have a new appreciation for looking at the labels, because prior to this I really didn’t! It’s so important without a stomach that you get enough protein and watch closely your sugar intake.
The next two weeks until I see my surgeon I hope will go fast. The liquid diet will be difficult to reinvent each day and make sure I am getting enough calories, protein and other nutrients to prevent extreme weight loss and lack of energy.
The first day so far hasn’t been too bad, made from scratch cream of potato soup (that we had to blend to smooth) with my mom and relaxed. We will see what adventures the next week brings.
Wishing you all happy and healthy days!